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Kick that stigma habit

Attitudes to Aids still need changing, says Edwin Cameron

Nov 30, 2009 10:38 PM | By Edwin Cameron

The Big Read: South Africa has been granted a second chance in the fight against HIV and Aids. With World Aids Day only a few days away, our country's millions living with HIV can celebrate the fact that we now have champions in our struggle to contain the epidemic - President Jacob Zuma and his new health minister, Aaron Motsoaledi.


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CHANGING 0UR MINDSET: A mural on HIV at the Guguletu Community Health Clinic on the outskirts of Cape Town
Picture: AP
CHANGING 0UR MINDSET: A mural on HIV at the Guguletu Community Health Clinic on the outskirts of Cape Town Picture: AP

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At South Africa's first ever Convention for People Living with HIV and Aids, held recently at Midrand, and attended by hundreds of people determined to deal effectively with the epidemic, we honoured Motsoaledi for his hands-on insights into the epidemic (gained when he worked as a doctor in a rural clinic at Jane Furse) and for his commitment to expand treatment and testing and to urge better prevention.

Of course it wasn't always like this. I was diagnosed with severe besetting symptoms of Aids in 1997. The drugs I took were working for me. But I dreaded going public about my status because of stigma. For stigma - a social blemish of disgrace, humiliation and rejection - remains the most intractable problem in the epidemic.

Our country's most poignant casualty to enacted stigma is Gugu Dlamini.

In late December in 1998, she was stoned and stabbed to death in Umlazi outside Durban. Just weeks before, she told Ukhozi FM that she was living with HIV. Members of her own neighbourhood surrounded her house and accused her of shaming her community by announcing her HIV status.

She died in hospital - her body broken not by the HIV she faced with such conspicuous courage, but by the injuries her neighbours inflicted on her.

Her killers still walk free, because the prosecution had to drop charges for lack of evidence.

It was Gugu's death that helped me to go public.

Eleven years after her death we have the tools to deal effectively with Aids. Medically, it is a fully manageable disease - after 12 years on antiretroviral drugs, and looking forward to my fifth Cape Argus cycle race early next year, I can truly testify to this fact.

But our prevention efforts are lacklustre. And too many people are still dying of Aids - unnecessary, anguishing deaths.

Much of the reason lies in stigma. President Zuma took this head-on when he delivered his first major policy address on Aids. A few weeks ago, he gave a remarkable speech to the National Council of Provinces. He emphasised that there must be "no shame, no discrimination and no recrimination".

The president's roots in rural KwaZulu-Natal - one of the epidemic's hot-spots - have clearly given him insight into the urgent need to deal effectively with Aids.

First is prevention - safe, effective, sensible, self-loving, other-loving prevention.

Second is testing. Every single one of us should agree to be tested. And if we've been tested, but more than six months ago, then we must agree to be tested again.

The president's mass testing campaign deserves our fervent support.

Testing opens the door to treatment. No South African should be sick with Aids.

It is true that expanding treatment to cover the many hundreds of thousands who risk death from Aids will not be easy. We need the healthcare infrastructure. We need commitment at middle management capacity and in delivery.

But it can be done.

Aids has always been a preventable calamity. It only requires us to implement relatively simple and manageable steps in prevention, testing and treatment.

But between us and that outcome lie our own fears, and our self-imposed impediment of stigma.

The good news is that it is up to each one of us to end stigma, now. We have the resources and we have the means to end unnecessary deaths from Aids.

We have the means to end new infections. We only have to do better what we know should be done.

As we commemorate World Aids Day, each of us can commit to that responsibility and effort. It's worth it, for us all.

  • Cameron is a Constitutional Court justice
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Comments

Dec 1 2009 02:08:08 AM
Tackler
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Nonsense! Public razzamatazz about "being tested" and then not revealing the test results is a total waste of time. What if those tests are positive? Just hush it up in shame and fear? What message does that send to the millions in the same position? Stay in the closet? Hide in shame?
Dec 1 2009 11:24:23 AM
nxila@thepub_with Schabir
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Dec 1 2009 02:08:08 AM
Tackler

sometimes I just want to punch you.

it's about "knowing" your status not "showing" your status
Dec 1 2009 11:35:38 AM
nxila@thepub_with Schabir
user name
FuZzKoP

if you in a relationship and are going to get intimate(by now relationship is serious I hope) then BEFORE you get jiggy with it

you and your partner go test, there'll be a window period, use a condom and if she isn't your wife, use it always! if you don't atleast know your statii
Dec 1 2009 12:39:48 PM
LouLou
user name
Just knowing your status is useless unless you do something about it! If you are negative then, if your lifestyle has included some dangerous sexual practices, change your way of life immediately!
If you are positive then you also need to change your lifestyle. Get onto ARV's, eat healthy foods and exercise. Then, and most importantly, practise safe sex! DO NOT expose innocent people to the virus. Stay monogamous. However, I state aver that the disease should be a notifiable disease to allow people the choice of whether or not they wish to have sex, even with a condom, with a person who is known to be HIV +. It should be their choice and they should not be duped into sex without knowing the true status of the prospective partner.
At the end of the day however, the best way to rid this country of the scourge of HIV/AIDS is to behave in a moral, ethical way. Keeping the very special, personal act of sex for someone to whom you are committed in a long term relationship. Promiscuity and the "decadent" lifestyles of so many people has led to the rapid spread of this disease. Wake up and realise that it up to each of us to take responsibility for remaining HIV negative.
Dec 3 2009 12:02:38 PM
User101
user name
I think it is everybody's responsibility to look after themselves. If i start a new relationship I will not jump into bed with that person without protection, without knowig their status, and he knowing mine. I have a responsibility to myself and to my family to take care or myself and love myself. My heart goes out to all HIV+ people suffering because some people are intolerant. Knowing your status is important as you are better equipped to make future life changing decisions. We as South Africans need to stop pointing fingers at each other and start loving one another and embracing our differences. Being HIV+ does not mean you are less of a human being than some idiot who does not even know his status and is living recklessly.
Dec 4 2009 01:50:10 AM
feelgood
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Tackler, how much money is SA spending for the AIDS program to match what the US is giving them? I don't hear nobody in the SA government talking about how much the SA government is going to spend. Tackler, you are right if Zuma is going to take the test he should make it public. However, the test is not accurate because it takes a year for the antibodies to show up in your blood stream once one has been expose to the HIV.


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