My medical choice

19 May 2013 - 03:36 By ©The New York Times
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Film actress and director Angelina Jolie arrives at last year's Academy Awards ceremony in Hollywood
Film actress and director Angelina Jolie arrives at last year's Academy Awards ceremony in Hollywood

Taking Control Angelina Jolie reveals why she decided to go public with her decision to undergo a preventive double mastectomy

My mother fought cancer for almost a decade and died at 56. She held out long enough to meet the first of her grandchildren and hold them in her arms. But my other children will never have the chance to know her and experience how loving and gracious she was.

We often speak of "Mommy's mommy", and I find myself trying to explain the illness that took her away from us. They have asked if the same could happen to me.

I have always told them not to worry, but the truth is that I carry a "faulty" gene, BRCA1, which sharply increases my risk of developing breast and ovarian cancer.

My doctors estimated that I had an 87% risk of breast cancer and a 50% risk of ovarian cancer, although the risk is different in the case of each woman.

Only a fraction of breast cancers result from an inherited gene mutation. Those with a defect in BRCA1 have a 65% risk of getting it, on average.

Once I knew that this was my reality, I decided to be proactive and minimise the risk as much as I could. I made a decision to have a preventive double mastectomy. I started with the breasts, because my risk of breast cancer is higher than my risk of ovarian cancer and the surgery is more complex.

On April 27, I finished the three months of medical procedures that the mastectomies involved. During that time, I have been able to keep this private and carry on with my work.

But I am writing about it now because I hope that other women can benefit from my experience.

Cancer is still a word that strikes fear in people's hearts, producing a deep sense of powerlessness.

But today it is possible to find out through a blood test whether you are highly susceptible to breast and ovarian cancer and then take action.

My own process began on February 2 with a procedure known as a "nipple delay", which rules out disease in the breast ducts behind the nipple and draws extra blood flow to the area.

This causes some pain and a lot of bruising, but it increases the chance of saving the nipple.

Two weeks later I had the major surgery, in which the breast tissue is removed and temporary fillers are put in place. The operation can take eight hours.

You wake up with drain tubes and expanders in your breasts. It does feel like a scene out of a science-fiction film. But days after surgery you can be back to a normal life.

Nine weeks later, the final surgery is completed with the reconstruction of the breasts with implants. There have been many advances in this procedure in the last few years and the results can be beautiful.

I wanted to write this to tell other women that the decision to have a mastectomy was not easy. But it is one I am very happy that I made.

My chances of developing breast cancer have dropped from 87% to less than 5%.

I can tell my children that they do not need to fear they will lose me to breast cancer.

It is reassuring that they see nothing that makes them uncomfortable. They can see my small scars and that's it. Everything else is just Mommy, the same as she always was. And they know that I love them and will do anything to be with them for as long as I can.

On a personal note, I do not feel any less of a woman. I feel empowered that I made a strong choice that in no way diminishes my femininity.

I am fortunate to have a partner, Brad Pitt, who is so loving and supportive. So, to anyone who has a wife or girlfriend going through this, know that you are a very important part of the transition.

Brad was at the Pink Lotus Breast Center in California, where I was treated, for every minute of the surgeries.

We managed to find moments to laugh together. We knew this was the right thing to do for our family and that it would bring us closer. And it has.

For any woman reading this, I hope it helps you to know you have options.

I want to encourage every woman, especially if you have a family history of breast or ovarian cancer, to seek out the information and medical experts who can help you through this aspect of your life and make your own informed choices.

I acknowledge that there are many wonderful holistic doctors working on alternatives to surgery. My own regimen will be posted in due course on the website of the Pink Lotus Breast Center. I hope that this will be helpful to other women.

Breast cancer alone kills some 458000 people each year, according to the World Health Organisation, mainly in low- and middle-income countries.

It has got to be a priority to ensure that more women can access gene testing and life-saving preventive treatment, whatever their means and background, wherever they live.

The cost of testing for BRCA1 and BRCA2, at more than $3000 (R28200) in the US, remains an obstacle for many women.

I choose not to keep my story private, because there are many women who do not know that they might be living under the shadow of cancer.

It is my hope that they too will be able to get gene-tested and that, if they have a high risk, they too will know that they have strong options.

Life comes with many challenges. The ones that should not scare us are the ones we can take on and take control of.

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